Hello everyone, I know I’m on here regularly answering posts and generally trying to be as positive as I can for those needing help with a herpes query. This time I’m actually writing to see if anyone can help me with something. In August of 1998 I caught a bad flu which was sweeping Australia and wound up in hospital with a high fever of 40C plus for several days. I was so sick. I had two weeks off work and during the second week of this flu I began being awoken from sleep, drenched (wet through) with sweat and with an excruciating headache which would only be relieved by sitting up. Any movement, breathing, coughing etc would cause the pain to surge beyond belief. This happened several days in a row and then as I got better from the flu I had it stopped. Six months later I caught a head cold and I began being awoken from sleep with the head pain again. By this time I had learnt from my last experience that as long as I sat still and perfectly upright it would gradually ease over about an hour or two. Again, when I got better from the cold the head pain also went away. It was two months later that I was diagnosed with herpes (type 2). I had had glands up in my groin on and off since that flu I had so I am a little suspicious that the herpes may have been in my system for a few months before I actually had the first outbreak. It is now five and a half years since I had those first episodes of morning head pain and nearly five years since I was diagnosed with herpes. Since then the head pain started happening independently of my having a cold or flu and strikes without warning at any time, awakening my from sleep and only easing if I sit perfectly still and upright. I have woken once from a general anaesthetic with it and have awoken after only one hour of sleep but it has never come on while I have been awake. It strikes every day for one to twenty (ish) days in a row and then suddenly goes away again. It doesn’t seem to be triggered by stress, my menstrual cycle, food, any of the things that would be of any significance (believe me I’ve tried everything). There seems to be no rhyme nor reason for it to happen. The doctors I have seen have ruled out cluster headache (a similar condition) and the pain I feel and describe is very different and 10 times worse than normal migraine (I have had normal migraine since I was five and for any other migraine sufferers out there the pain of migraine is excruciating). No one has ever been able to give me an answer. I am incapcitated at least 60 days per year with this weird head pain and can never predict when it will occur. All scans, including MRI have returned normal and the only answer the doctors have come up with is that I probably had some sort of meningitis/encephalitis when I had that flu in 1998 and it’s left some kind of damage. I have tried everything. I get depressed about it every now and then but have pretty much learnt to pick up where I left off when a head pain attack ends and carry on with my life. I am perfectly healthy otherwise and by looking at me, I am fit and attractive and there would be no way that anyone would be able to tell that I go through a private head pain hell for weeks at a time several times a year. Some times I would have had a herpes outbreak either before or after the onset of the head pain attack but it doesn’t happen every time. Has anyone ever heard of this type of thing. The only thing I can liken it to that the average person can identify with is: Have you ever had a headache brought on by being idle or sleeping in too long? If you take that headache and magnify it a million times, that is what wakes me out of sleep. Can any of you identify with this. Do you think it’s related to the herpes. I am on Famvir full time now and although it stops herpes outbreaks it hasn’t made a difference to the head pain. Please help, I try not to get desperate but sometimes it gets the better of me. I’ve only just recovered from a two week attack. My employer is not impressed (because I take so much time off work even though I am a diligent, hard worker), I feel like two weeks of my life have just disappeared once again and it actually takes me a little while to recover just from the trauma of having had this kind of pain. Anything you can recommend or suggest will be gratefully accepted. Thanks, Christi.